Share this article Share The Buchanans, who are devout Christians, refused to abort the baby, knowing they would love him and he would have a purpose. Doctors said there was an 85 per cent chance of Lacey miscarrying.
When she went to Vanderbilt Medical Center to deliver Christian in February , she did not know if he would live. He survived - yet his condition was much worse than doctors had predicted. Holding Christian's face away from the camera, Lacey recounts her excitement at her pregnancy - and how doctors told her something was wrong with her unborn child Memories: Lacey holds up cards describing the moment she found out her son had a rare condition Fears: Lacey said she and her husband Chris returned home not knowing how to care for a blind child Fighter: Lacey holds up a picture of Christian, who underwent his first operation at just four days old The baby boy suffered from Tessier cleft, a rare and severe cleft palate that can affect different areas of the face - such as the nose, eyes and jaw - in addition to the mouth.
Christian had no palate, was unable to shut his mouth and was born without eyes. At four days old, he underwent his first surgery. Through a series of operations, doctors have closed his cleft lip but his palate will require more surgeries, his mother said.
He spent four weeks in the neonatal intensive care unit at Vanderbilt Children's Hospital. When he was finally ready to leave and returned home, 'things were hard', one of Lacey's note cards reads. She and her husband Chris were unprepared for how to raise a blind child, she explains. Lacey recounts some of the judgmental comments she received when Christian went home Cruel: Despite the struggles they faced, Lacey said she knew she was never going to abort Christian She also struggled with judgmental stares and whispers from people they passed.
People would ask 'What's wrong with your kid? Christian was born with a Tessier cleft, a severe type of cleft lip and palate that is characterised by severe deformities of soft tissue and bony parts of the face. It occurs when parts of the face do not fully fuse together while the baby is in the uterus. There are different categories of Tessier clefts, with deformities affecting the centre of the face, the nose and eyes, or large abnormalities of the lower jaw.
It occurs in about one in , births. In her video, Lacey points out her son is one of just 50 people in the world with Tessier cleft. Those born with the condition must undergo a series of operations due to medical problems associated with it, including breathing, eating, speaking and hearing difficulties.
As Lacey, 25, struggled to stay strong, it was Christian who fought back. When people would stare at him, he would begin to giggle - and they would start to giggle too.
She also says she knows she did the right thing not to abort him as he is 'the love of my life'. The video has had an incredible response, which comes as a bit of a surprise to Lacey.
One of her favorite moments is when Christian laughs- something that happens often. As Lacey struggled with the comments, it was her son Christian who stood up against them Loved: Lacey added that 'anyone who meets Christian falls in love with him pretty quickly' 'It's so funny to see him laugh because, since he can't see, anything that he finds amusing is because of sight or touch.
It's just wonderful because he really knows the meaning of life's simple pleasures,' she said. Writing on her blog, Leading The Blind , Lacey said she was inspired to make the video after she saw another YouTube film by a woman named Lizzie, who had also suffered judgemental comments for her looks.
Lacey, who is a law student studying in Nashville, said Lizzie's condition meant her facial features were distorted and she struggled to gain weight.
She, too, revealed her face at the end of the film. Lacey, who is a law student, said she could not imagine life without Christian, who is now one year old Motherly: Lacey was inspired to make the video after seeing one by a girl who also suffered deformities Support: Since uploading the video she has received hundreds of messages from well-wishers, she said After Lacey created the video in March, she also uploaded it to a Christian channel named GodTube and received more than 20, hits in one day.
Thank you so much to everyone who is supporting us in our journey! See below for video.